3 Years Later and I’m Finally Ready
I cannot believe that Jack Jack will be three years old in just one week. Jack Clifford Trotter, the medical … Continue Reading 3 Years Later and I’m Finally Ready
My Plan B Perspective
Recently I had an experience that I don’t necessarily want to share but feel like it may offer some perspective … Continue Reading My Plan B Perspective
Believe Mothers!
I will never forget the many times I was comforted by someone when I just needed them to believe me … Continue Reading Believe Mothers!
Just Jack: An Important Medical Update in Time for World Rare Disease Day!
Jack is so many things. He’s capable, he cute as a button, he’s smart and he’s stubborn, he’s affectionate, he’s … Continue Reading Just Jack: An Important Medical Update in Time for World Rare Disease Day!
Rare isn’t all unicorns and sparkles: World Rare Disease Day 2019
What does World Rare Disease Day mean to you? Have you ever even heard of it? Prior to having Jack, … Continue Reading Rare isn’t all unicorns and sparkles: World Rare Disease Day 2019
SMOs: What’s Good to Know!
You probably already know what AFOs are, but what about the AFO’s lesser known little brother, the SMO? Let’s give … Continue Reading SMOs: What’s Good to Know!
“We’re in the Same Boat Now”
This quote can mean so much to so many, but as parents of complex kiddos, I feel like we have … Continue Reading “We’re in the Same Boat Now”
Metabolic Mama Origin Story
What if I told you that I felt like I have been in a fog for the past few … Continue Reading Metabolic Mama Origin Story
KILL BILL VOL. 4
If you’re reading this, hopefully you have also seen Quentin Tarantino’s Kill Bill so you don’t think I’m a psychopath … Continue Reading KILL BILL VOL. 4
Epilepsy Awareness: Siblings Edition!
It’s a good thing that Jack’s big sister, Rowan, was already in love with butterflies and the color purple before … Continue Reading Epilepsy Awareness: Siblings Edition!
Where does that leave Jack?
Hi friends! It has been a while so allow me to reintroduce for new followers! I’m Leah, Jack’s mom. We … Continue Reading Where does that leave Jack?
