Recently I had an experience that I don’t necessarily want to share but feel like it may offer some perspective … Continue Reading My Plan B Perspective
I will never forget the many times I was comforted by someone when I just needed them to believe me … Continue Reading Believe Mothers!
This quote can mean so much to so many, but as parents of complex kiddos, I feel like we have … Continue Reading “We’re in the Same Boat Now”
Chapter One in Jack’s Seizure Saga
Jack is so many things. He’s capable, he cute as a button, he’s smart and he’s stubborn, he’s affectionate, he’s … Continue Reading Just Jack: An Important Medical Update in Time for World Rare Disease Day!
What does World Rare Disease Day mean to you? Have you ever even heard of it? Prior to having Jack, … Continue Reading Rare isn’t all unicorns and sparkles: World Rare Disease Day 2019
You probably already know what AFOs are, but what about the AFO’s lesser known little brother, the SMO? Let’s give … Continue Reading SMOs: What’s Good to Know!
What if I told you that I felt like I have been in a fog for the past few … Continue Reading Metabolic Mama Origin Story
This post is dedicated to all the mamas who bloom where they are planted, making minivans and mic-key buttons the … Continue Reading Minivans are the new cool, but kindness is always the coolest!
If you’re reading this, hopefully you have also seen Quentin Tarantino’s Kill Bill so you don’t think I’m a psychopath … Continue Reading KILL BILL VOL. 4
It’s a good thing that Jack’s big sister, Rowan, was already in love with butterflies and the color purple before … Continue Reading Epilepsy Awareness: Siblings Edition!
This summer was the first time Jack has ever gotten to stand up and hug his big sister thanks to … Continue Reading What’s with the walker?
Inchstones. How I wish I had heard this term two years ago when we started this journey. When you’re having … Continue Reading Inchstones
Hi friends! It has been a while so allow me to reintroduce for new followers! I’m Leah, Jack’s mom. We … Continue Reading Where does that leave Jack?
We survived one full year, all of us. I haven’t posted about our journey the way I would have liked … Continue Reading It’s been one year…